Marfan Syndrome - National Marfan Foundation

NMF Media Contact Information:

Thank you for your interest in Marfan syndrome . For immediate assistance, media may contact Eileen Masciale, Consulting Director of Communications, 631-665-2163,

We can arrange interviews with leading experts on Marfan syndrome , as well as with individuals affected by the disorder. Electronic photographs are also available.

Media Kit: Marfan Syndrome Q & A ife Expectancy Aortic Dissection: Facts & Figures

Press Releases:

04-15-11 National Marfan Foundation Launches Mobile Site to Put Marfan Syndrome Diagnosis Directly into the Hands of Physicians.

04-05-11 National Marfan Foundation Benefit to be Held on April 7 at Cipriani 42nd Street.

02-01-11 Keith Bridwell, MD, Chief of Spine Surgery in the Department of Orthopaedic Surgery and Asa C. and Dorothy W. Jones Professor of Orthopaedic Surgery, and Lawrence Lenke, MD, Jerome J. Gilden Endowed Professor of Orthopaedic Surgery, Washington University School of Medicine, are the 2011 recipients of the National Marfan Foundation s Hero with a Heart Awards.

08-12-10 Alan Braverman, MD, named chair of the National Marfan Foundation's Professional Advisory Board

07-01-10 New Diagnostic Criteria for Marfan Syndrome Published in Journal of Medical Genetics: New Guidelines Facilitate Accurate Diagnosis of Life-Threatening but Treatable Genetic Disorder

06-14-10 Baylor College of Medicine and University of Texas Science Center at Houston to Host 26th Annual National Marfan Foundation Conference

04-05-10 National Marfan Foundation Benefit to be Held on April 22 at Cipriani 42nd Street

03-16-10 New Coalition Launches Multi-Faceted Campaign to Maximize Impact of New Aortic Disease Diagnosis and Treatment Guidelines from American Heart Association, American College of Cardiology and Nine Other Professional Organizations; TAD Coalition Announces Ritter Rules to Heighten Awareness of Risk Factors, Symptoms, Urgency and Diagnosis of Aortic Dissection

03-16-10 From AHA/ACC: New Guidelines Aim to Prevent Unnecessary Death from Thoracic Aortic Disease; Multidisciplinary team of experts weighs in on diagnosis and management

02-01-10 February is National Marfan Awareness Month- Clinical Trial Participants Still Needeed

01-21-10 Gregorio Sicard, MD, to be Honored at Heartworks St. Louis Gala, March 6

07-13-09 Mayo Clinic to host 25th Annual National Marfan Foundation Conference, Aug 6-9, 2009

02-02-09 RENT: Filmed Live on Broadway Helps Raise Awareness and Saves Lives

02-01-09 February is National Marfan Awareness Month

10-06-08 NIH Launches New Web Site for Parents on Medical Research Studies for Children

08-21-08 FoxNews.com posted an important article about Marfan syndrome awareness and Michael Phelps on its website

Pulitzer Prize-winning Series on Aortic Aneurysm and Dissection- Kevin Helliker and Thomas M. Burton, reporters at The Wall Street Journal, were awarded the 2004 Pulitzer Prize for Explanatory Reporting for uncovering and explaining the surprising prevalence of aneurysms. The entire series can be accessed on .

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